So after the upper GI last week I was called by Dr. Smoot and there was some confusion as to what was going on. My pedi diodn’t feel as though a cleft seemed accurate and thought that if there was a cleft she would have noticed and if not her for sure the NICU staff. Sooo we are kind of back to square one of not knowing anything for certain. The doctor who reviewed the upper GI said that she thought that from what she saw it could be cleft but diagnosed it as nasalpharyngeal reflux.
With that being said we are seeing an ENT on the 25th of November, having a swallow study done on December 8th and I am still awaiting appointments from Texas Children’s for a clinical feeding and to see a speech therapist (not for speech, but to correct feeding problems).
Hoping for the best…when I looked into his mouth you certainly cannot see an obvious cleft which is why we are seeing the ENT. If there is a cleft it’s either really small or further back in the mouth. For now he is off his medications and it’s a matter of waiting to see doctors to learn more, but at least we know now that when he eats its going into his nasal cavity.
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