Today I took Reece down to Texas Children's for his upper GI. The doctor noticed almost immediately that the barium that he was being feed was going up into his nasal cavity (while some also went into his stomach). The doctor said that his stomach was doing its job but the problem from what she could seem is in the mouth and feels certain that he has a cleft in the palate of his mouth that is allowing fluids into the nasal cavity which is causing his feedings to come out his nose.
I KNEW it wasn't reflux and have said that time and time again. So from here what is next? Well, I called my pedi immediately after the visit downtown and am still waiting for a call back. I called again earlier and she was given the message and test results so I am hoping she calls soon so we can get the ball rolling.
At this point I don't know anything for certain other than a cleft palate is generally correctable but you do have to have surgery. Cleft is one of the most common facial deformities. I don't know what the surgery will consist of or how long till it can be done but I imagine I will have to go back to my pedi and get a referral for an ENT (ears nose and throat) and then proceed onward.
For now I am trying to remain optimistic. Cleft palate is associated with several disorders and it frustrates me because from what I have read online the number one cause is from drinking or using drugs or not have good prenatal care while pregnant and I was probably one of the best pregnant mommies when it came to keeping away from all of that and doing what was right. So once again another strike against Reecey and another tally to his genetic anomalies. I won't jump to conclusions yet but I do imagine that little by little this baby has a lot working against him but will over come it because he is such a trooper and has a great big team of supporters! Oh how I love him!
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